Clearly I’m awesome at updating everyone about the twins. Its been 4 weeks since my last post but thankfully, not much as happened other than good news.
We went in at the 15.5 week ultrasound and the midwife tried to find the genders. She said she couldn’t find any penisies but that her machine was “not good” and she was “not confident” so we “shouldn’t go out and buy anything pink or tell anyone”.
But I’ve had 3 ultrasounds since and all of them have yet to find a tally-wacker so, girls it is!
I had our good friend come watch the kids while I went to my appointment right at 18 weeks because I felt it was time I stood up and advocated for myself and the twins. Bare with me:
The ACOG (American College of Obstetrics and Gynecology) has care standards for these types of twins becasue of their shared placenta. The gist of it is:
- They should not be in the womb longer than 36 weeks 6 days or else you risk both their lives due to placental failure.
- The mother should be referred to a Perinatologist by 16 weeks.
- The mother/babies should be monitored at least every 2 weeks starting at 16 weeks until delivery. More monitoring by ultrasound if babies show any signs of distress.
- Every appointment from 16 weeks on the babies should be measured for weight in grams, largest pocket of fluid depth in centimeters, blood flow dopplers of the pressure of blood coming in and out of each cord, placenta oxygen flow, and to check that the bladders are full of fluid.
Well, here I was at 18 weeks, I’ve yet to see a Perinatologist, my OB receptionists keep booking me with midwives (who have no business treating high risk patients, their jobs – which they’re great at – are to monitor and assist in completely normal, uncomplicated, vaginal births), I’ve yet to get any of these measurements – commence my anxiety prone freak outs. Babies die from TTS… I don’t think my babies have this, but our insurance policy is that we monitor to catch any would-be signs early. We’re not doing that, so I decided I needed to advocate for the girls.
I booked my appointment with my OB, refusing the midwife scheduling and opened my convo with “Ok, so I KNOW I have generalized anxiety disorder… so just remember that and help me to ease my mind..”
I went on to voice all my lack of proper care concerns and my OB, who hadn’t seen me since my 11 weeks was pretty upset. He had no clue I hadn’t seen the Perinatologist since he was the person who referred me to one (more on that in a bit). He wasn’t happy the receptionists were even asking me if I wanted appointments with a midwife. He wasn’t happy we had no baseline measurements for the twins or that we wouldn’t get these measurements until 20.5 weeks when I finally do visit the Perinatologist.
**Note on the referral** Doc DID send it, but when the office in Syracuse got it they only read the first line referring to the genetic counselor at 12 weeks. Aparently they want 2 separate faxed referrals, not one with 2 separate orders on it. So they ignored the second part and I was never scheduled with the doctor. Once I see the MFM (perinatologist) they will takeover my care and even when I see my current OB, it will be under the direction of what the MFM wants him to do. Moving on.
So because the MFM office sees people within a 2 hour radius, they’re booked solid. So he sent me for an ultrasound on 11/3 at the hospital with an ultrasound tech to get all the measurements. He wants to make sure that if we go to the MFM on 11/13 and the babies are 2 weeks size difference – that we know whether this size difference has just been the case for a while or whether its come out of nowhere. The latter being the one that would cause alarm and extra monitoring.
That ultrasound took forever but we got wonderful, wonderful news. Other than the US tech being kinda… a different personality… with interesting talking points, we did find out that –
- Babies discordance (weight difference) has decreased from 14.9% to 12.9%. Baby A is 275g and Baby B was 241g (I think, I can’t quite remember but I know the percentages are right. Basically A is 10oz and B is 9oz).
- Babies both have lots of fluid around them (awesome!)
- Both bladders are full and both babes were practicing swallowing.
- Both were moving a lot and had nice strong heartbeats, and 4 chambers in their hearts!
- My placenta previa has resolved itself and cannot go back! So all the bleeding out fears can go away!
I have another appointment on Tuesday with another OB at the office. Not the one I personally am assigned to for care, but still another Doc. I’m cool with that.
The following Monday is my 2 hour ultrasound in Syracuse with the MFM ultrasound tech and then I will meet with the MFM to officially have them review the ultrasound anatomy results and for them to takeover our care and come up with action plans for the rest of the appointments.
Our big milestone comes on December 9th when the babies are officially 24 weeks gestation and COULD be medically supported to live outside the womb should something
go wrong. Clearly our goal is to keep them in as long as humanly possible (36w6d) but its nice to know that if something were to go wrong, and nothing can be done to keep them inside me, th
ey could come out and medicine is that advance that they have a shot at survival. We hope and pray that they make it to at least 32 weeks though, so please keep that in your prayers! (32 weeks is February 2nd).
Heres a fun peek at my belly. They’re rapidly growing and kicking and moving so much. I’m loving that I can actually tell who kicked or moved when I feel it. The picture on the left was taking 16 days before the picture on the right. Belly is bumpin out for sure!